11/27/2004 06:05 PM
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Eurowrite
Posts: 10
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Your story, although unique in and of itself, is very familiar ro me. I have a Venous Malformation in my left foot that I only began treating at Dr Yakes' practice in March of 2004 (I am 27). I am more than half done with my treatments (so far I have done five) and although there is pain and discomfort after most treatments, the end result is more than worth it. In addition, if vascular malformations are left untreated they can grow spontaneously due to hormonal fluctuations. For example: puberty, pregnancy, and menopause can cause the VM to grow rapidly and, depending on the size of it, it can complicate other organs or tax the heart. I highly recommend seeing Dr Yakes for sclerotherapy treatments. The injections are far more successful than the butchering that is done under many doctors knives. These kinds of lesions should never be surgically removed. They need to be killed through very careful and well planned injections of ethyl alcohol. If you need information, contact Yakes office in Denver. The staff there are amazing! I never thought that there would be hope for me... heck, I didn't even know other people existed out there with the same problem! Now I am being successfully treated and meeting other people like myself. I am open to discussion anytime. Please feel free to email me.
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01/03/2004 02:49 PM
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HaleyT
Posts: 2
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I have had several embolizms (3 to be exact) with Dr. Yakes and have wonderful results. I have a hemangioma inside my talus (ie. ankle bone)which almost collapsed my ankle. I had a very evasive surgery (no one new exactly what was wrong until they went in) with a wonderful orthopedic surgeon in Denver Dr. Wilkens. Dr. Wilkens had thought he removed the entire tumor(not knowing it was a hemangioma until the Mayo Clinic came back with their report), but unfortunately it grew back within a year. I was devistated since I had already suffered through 3 months on crutches and many more months of rehab, all while trying to get a college scholarship in track. Before Dr. Wilkens tried any other treatments, he sent me to Dr. Yakes. Three embolizms later, which spanned over two years, I have no more issues with my hemangioma. Five years have passed and I still have a couple pockets left, but they are not growing so no more embolisms are required. The only treatment is to have an MRI done every year to track the tumor. I think an important note is that at the time I met Dr. Yakes, I was a collegiate track athlete and was still able to compete after the embolizms. I was able to walk the day of surgery, though a little stiff and sore! I understand all cases are different, but I cannot stress enough how wonderful Dr. Yakes (and Dr. Wilkens!) have been. Dr. Yakes, his nurses, and support staff have always been caring and knowledgable. I would recommend him to anyone and everyone who needs him. I have slacked a bit and haven't had an MRI in 2 years, so I'll have to give Dr. Yakes a call!!! Good luck to everyone... I hope all your situations will work out as well as mine has. -Haley
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My 10 yr. old daughter has angiodysplasia in her left foot that didn't start to present till the age of 2 yrs. At first I thought she fractured her foot because of the swelling over the top of her foot and to make a very long story of very frustrating and uneventful experiences with numerous doctors misdiagnosing her she finally was dx. in may of 2001. She has chronic pain that goes in and out of extreme acute pain; (now the pain seems to be more nerve involved) and no herbal, topical, over the counter or prescription remedy really helps. There are times when her pain is so bad she can't walk or sleep. When the veins get really distended her foot gets visibly contorted. Does any of this sound like anything you've experienced ? We just recently heard about Dr. Yakes by a fluke . He sounds great but I'm so afraid of causing her more pain and trouble, specially since the last Dr. I dropped said he could CUT it out in an hour w/ no complications and had done so many A.V.M surgeries w/ high success rates, but had no proof or patent refs. I'm happy to hear Dr. Yakes helped your pain and I can't tell you how nice it is to finally be able to talk to other people who have had similar experiences after having no resources for 7 yrs. Tyna and Hokulea 
