Vascular Malformation

I am need of information from anyone that can help on a situation that has developed over the past few years involving a painful lesion on my left thigh. After several MRI's and several visits to various doctors I have been diagnosed with a vascular malformation of hamstring muscles which also may include a mix of cavernous venous angioma. I have been advised by my latest Dr. that surgery would be very difficult due to the malformation lying so deep into the muscle the surgery may impair my walking ability to an extent. As of late the lesion has become quite painful and it tends to impede on everyday activities, anyone who may have similar experience or any advice please reply. Thank You